Stroke Organizations
National Stroke Association
www.stroke.org
The web site of this non-profit organization features basic information on stroke for patients, caregivers, and their families.
American Stroke Association
www.strokeassociation.org
The ASA is the stroke division of the American Heart Association. Their site has lots of information on stroke and the recovery process, including printable booklets and tips on how you can get involved in the cause.
National Institute of Neurological Disorders & Stroke
www.ninds.nih.gov
NINDS is the part of the National Institutes of Health that conducts and supports research on brain and nervous system disorders, including stroke. Here you can find information on a wide variety of disease topics and read up on the latest government-sponsored research on stroke.
Support Groups & Advocacy
Find a stroke support group in your area – online search tool
strokegroup.americanheart.org/strokegroup/public/zipFinder.jsp
Find a stroke support group in your area – another search tool
nsa.networkats.com/members_online/members/supportgroup.asp
American Stroke Association stroke discussion group
my.americanheart.org/jiveforum/index.jspa
Stroke Community Awareness Kit – tools and tips to spread the word about stroke in your community
www.strokeassociation.org/presenter.jhtml?identifier=3030025
Successful Stroke Support Groups Guide – a 30-page booklet from the American Stroke Association on how to create a support group
www.strokeassociation.org/presenter.jhtml?identifier=3022731
Stroke Family Support Network - Call 1-888-4-STROKE (478-7653) and ask for the Stroke Family Support Network
Stroke call centers – list of contacts that will answer your stroke-related medical questions
www.stroke.org/site/PageServer?pagename=Hotlines
Family Caregiver Alliance – an organization that assists caregivers of adults who have brain impairment
www.caregiver.org
National Family Caregivers Association – advocacy and lots of information for caregivers
www.nfcacares.org
Strength for Caring - online community and resource center for caregivers
www.strengthforcaring.com
Health Care Info
Find a neurologist – from the American Academy of Neurologists
Find a Certified Stroke Center or Rehabilitation Facility - National Stroke Association
Medicare and Medicaid – get answers to your questions about coverage of stroke rehabilitation and support for stroke survivors in these programs
CITIES Community Stroke Outreach Program
www.omhrc.gov/templates/content.aspx?ID=3342
The Community Initiatives to Increase Risk Awareness and Eliminate Stroke (CITIES) is a community-based education program administered by the Office of Minority Health in the US Department of Health and Human Services. Project activities include outreach, health screening, referrals to appropriate health services, health education workshops, distributing informational materials, and media outreach.
The main goals of the CITIES program are to:
- Increase community awareness and knowledge of high blood pressure and stroke
- Enhance early detection of high blood pressure and stroke and make sure people are treated early
- Increase community adoption and use of lifestyle behaviors known to prevent stroke and control high blood pressure
- Make sure people with high blood pressure have it under control
The three current CITIES centers are The Medical University of South Carolina (Charlestown, SC), Forsyth Medical Center Foundation (Winston-Salem, NC), and The University of Alabama at Birmingham (Birmingham, AL).
To learn more, visit the Office of Minority Health on the web at www.omhrc.gov.
